True or False: Registry purpose determines registry design.
True
Software companies contribute to registry infrastructure by:
Designing and
... [Show More] providing electronic programs through which registry data are collected and transmitted.
Individuals contribute to registry infrastructure by:
Gathering and entering data into registry databases.
Organizations contribute to registry infrastructure by:
Supporting and funding registries, defining and monitoring data standards, collecting, reporting, and transmitting data.
Quality control encompasses:
A. Data Definitions
B. Personnel Training
C. Data Edits
D. Data submission tracking
E. None of the above
F. All of the above
F
Case definition includes:
A. A list of collected data items
B. Follow-up policy
C. Identification of population covered
D. Security control provisions.
C
True or False: Registry software just replaces paper-based ways of collecting and storing data
False
Of the registries listed, which goes with:
Measure efficacy of treatment drugs.
A. Tremolite Asbestos Registry
B. Birth Defects Registry
C. Intestinal Transplant Registry
D. Breast Health Registry
E. GIST Registry.
E
Of the registries listed, which goes with:
Monitor surgical procedure.
A. Tremolite Asbestos Registry
B. Birth Defects Registry
C. Intestinal Transplant Registry
D. Breast Health Registry
E. GIST Registry.
C
Of the registries listed, which goes with:
Provide information about services.
A. Tremolite Asbestos Registry
B. Birth Defects Registry
C. Intestinal Transplant Registry
D. Breast Health Registry
E. GIST Registry.
B
Of the registries listed, which goes with:
Analyze environmental exposure effects.
A. Tremolite Asbestos Registry
B. Birth Defects Registry
C. Intestinal Transplant Registry
D. Breast Health Registry
E. GIST Registry.
A
Of the registries listed, which goes with:
Integrate treatment management. .
A. Tremolite Asbestos Registry
B. Birth Defects Registry
C. Intestinal Transplant Registry
D. Breast Health Registry
E. GIST Registry.
D
True or False: Data standards are nice but not required for efficient registry operations.
False
Registries support hospital facilities by:
Supporting quality improvement activities through monitoring of therapies and outcomes.
Registries support the pharmaceutical industry by:
Tracking complications and outcomes for patients taking specified drugs.
Registries support public health surveillance by:
Providing disease-specific incidence information and survival data, and by revealing trends in severity, treatment, and delivery services over times and geographic areas.
Match one of the registries in the column with it's purpose:
A. AFIP DNA Registry
B. Nun study
C. National Marrow Donor Program
D. Trauma Registry
E. Advance Directive Registry.
Purpose: Making living wills accessible
E
Match one of the registries in the column with it's purpose:
A. AFIP DNA Registry
B. Nun study
C. National Marrow Donor Program
D. Trauma Registry
E. Advance Directive Registry.
Purpose: Finding transplant matches
C
Match one of the registries in the column with it's purpose:
A. AFIP DNA Registry
B. Nun study
C. National Marrow Donor Program
D. Trauma Registry
E. Advance Directive Registry.
Purpose: Identifying combat casualties
A
Match one of the registries in the column with it's purpose:
A. AFIP DNA Registry
B. Nun study
C. National Marrow Donor Program
D. Trauma Registry
E. Advance Directive Registry.
Purpose: Tracking course of Alzheimer's disease
B
Match one of the registries in the column with it's purpose:
A. AFIP DNA Registry
B. Nun study
C. National Marrow Donor Program
D. Trauma Registry
E. Advance Directive Registry.
Purpose: Preventing accidents
D
Which is not a current trend in registry software development?
A. Writing programs to perform specific registry functions.
B. Writing programs that facilitate transmission of data between registries
C. Writing programs that open registry databases to general public inquiries
D. Writing programs that link registry data with case management functions.
C
True or False: Registries are designed to collect every bit of available information about patients included in their databases.
False
Potential benefits of a diabetes registry include:
A. Automated notification of clinic visits.
B. Automated identification of uncontrolled blood sugar values
C. Analysis of treatment regimen outcomes
D. None of the above
E. All of the above
E
Match the registries in the column with main supporting agencies. (May be more that one)
A. Early Rheumatoid Arthritis Treatment Evaluation Registry
B. National Exposure Registry
C. Alzheimer's Disease Registry
D. United Stated Eye Injury Registry
E. Environmental Polymorphism Registry
F. Lupus Registry
G. Special Needs Emergency Registry
H. Temporomandibular Joint Replacement Registry
I. Cystic Fibrosis Registry
J. Lamotrigine Pregnancy Registry
Supporting Agency: Federal Government
B, F
Match the registries in the column with main supporting agencies. (May be more that one)
A. Early Rheumatoid Arthritis Treatment Evaluation Registry
B. National Exposure Registry
C. Alzheimer's Disease Registry
D. United Stated Eye Injury Registry
E. Environmental Polymorphism Registry
F. Lupus Registry
G. Special Needs Emergency Registry
H. Temporomandibular Joint Replacement Registry
I. Cystic Fibrosis Registry
J. Lamotrigine Pregnancy Registry
Supporting Agency: State government
C, G
Match the registries in the column with main supporting agencies. (May be more that one)
A. Early Rheumatoid Arthritis Treatment Evaluation Registry
B. National Exposure Registry
C. Alzheimer's Disease Registry
D. United Stated Eye Injury Registry
E. Environmental Polymorphism Registry
F. Lupus Registry
G. Special Needs Emergency Registry
H. Temporomandibular Joint Replacement Registry
I. Cystic Fibrosis Registry
J. Lamotrigine Pregnancy Registry
Supporting Agency: Academic center
A, E, H
Match the registries in the column with main supporting agencies. (May be more that one)
A. Early Rheumatoid Arthritis Treatment Evaluation Registry
B. National Exposure Registry
C. Alzheimer's Disease Registry
D. United Stated Eye Injury Registry
E. Environmental Polymorphism Registry
F. Lupus Registry
G. Special Needs Emergency Registry
H. Temporomandibular Joint Replacement Registry
I. Cystic Fibrosis Registry
J. Lamotrigine Pregnancy Registry
Supporting Agency: Not-for-Profit organization
D, I
Match the registries in the column with main supporting agencies. (May be more that one)
A. Early Rheumatoid Arthritis Treatment Evaluation Registry
B. National Exposure Registry
C. Alzheimer's Disease Registry
D. United Stated Eye Injury Registry
E. Environmental Polymorphism Registry
F. Lupus Registry
G. Special Needs Emergency Registry
H. Temporomandibular Joint Replacement Registry
I. Cystic Fibrosis Registry
J. Lamotrigine Pregnancy Registry
Supporting Agency: Commercial enterprise
J
_____________ presents incidence, prevalence, and mortality estimates from 27 cancers for all countries in the world
GLOBOCAN
Two large international studies focused on cancer survival are
Eurocare and Concord
The European Network of Cancer Registries (ENCR) was established in 1989 to improve the quality, comparability, and availability of cancer incidence data, and develop a basis for monitoring cancer rates in the ____________ ____________.
European Union [Show Less]